tag:blogger.com,1999:blog-6539769365000202093.post2616521056583291899..comments2023-09-10T06:45:28.292-04:00Comments on FTD/Dementia Support Blog: To test or not to test?Howardhttp://www.blogger.com/profile/07084503950259010035noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-6539769365000202093.post-50775277791973758362013-10-04T07:44:12.048-04:002013-10-04T07:44:12.048-04:00You and my Mom sound SO much alike! lol She resis...You and my Mom sound SO much alike! lol She resists meds as much as possible. She did, however, start wearing a patch for her jerks/muscle spasms as they were really wearing her out. My aunt and I suggested she revisit the neuropsych. yesterday, but she decided against it. She said just what you said, "I have FTD, its going to get worse, I know I am declining, why rack up medical bills and have to listen to a Dr. tell me I'm declining:" It's her life, its her diagnosis. I say let her have control over everything she can, you too. Reading this post brought me comfort, knowing my mom has support from someone who thinks just the way she does. If she wasn't gay, I'd say you guys were long lost soul mates! LOL<br />Anonymoushttps://www.blogger.com/profile/13957530512376590116noreply@blogger.comtag:blogger.com,1999:blog-6539769365000202093.post-31124502161904047312013-10-03T23:35:46.337-04:002013-10-03T23:35:46.337-04:00Hi A,
I hear you and feel for you. If your showing...Hi A,<br />I hear you and feel for you. If your showing symptoms your more than welcome to join the FTD Patient Support Group on Facebook. Shoot me an email: howardglickftd@gmail.com<br />HowardHowardhttps://www.blogger.com/profile/07084503950259010035noreply@blogger.comtag:blogger.com,1999:blog-6539769365000202093.post-46088862451837170722013-10-03T23:31:10.970-04:002013-10-03T23:31:10.970-04:00Thanks Marlene,
Thank you for understanding. The n...Thanks Marlene,<br />Thank you for understanding. The neuropsych testing was brutal for me. Left me totally distraught. <br />HowardHowardhttps://www.blogger.com/profile/07084503950259010035noreply@blogger.comtag:blogger.com,1999:blog-6539769365000202093.post-26899163116119325412013-10-03T23:27:22.695-04:002013-10-03T23:27:22.695-04:00Thank you Rita. Appreciate your feedback.Thank you Rita. Appreciate your feedback.Howardhttps://www.blogger.com/profile/07084503950259010035noreply@blogger.comtag:blogger.com,1999:blog-6539769365000202093.post-19052381598923146862013-10-03T18:10:21.313-04:002013-10-03T18:10:21.313-04:00In the beginning, of testing, I saw where this was...In the beginning, of testing, I saw where this was 'headed' and said to my Spouse, "Your call when you have had enough." He endured more, and said to me on the way home from the Clinic, "I have had enough!". Done. I TOTALLY get it. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6539769365000202093.post-15429074136076737272013-10-03T17:53:19.593-04:002013-10-03T17:53:19.593-04:00I do understand Howard, I struggle with doing it f...I do understand Howard, I struggle with doing it for research purpose, or just stop, and live one day at a time on my terms. I must tell you that I admire you and this blog is amazing.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6539769365000202093.post-28441214068445296402013-10-03T15:40:59.624-04:002013-10-03T15:40:59.624-04:00It's your life Howard and you have every right...It's your life Howard and you have every right to live it out the way you want! Critics be damned!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6539769365000202093.post-18767528155416834422013-10-03T15:06:17.265-04:002013-10-03T15:06:17.265-04:00Hey Howard,
Though I understand your reticence to...Hey Howard, <br />Though I understand your reticence to more testing, I have gone the complete opposite way. I am on board with you as far as NO MORE MEDS!!!! and screw the psych evals...I'm F'd and I already know that. However I have the the MAP T-17 gene mutation so I am the "perfect" candidate (read Guinea Pig) for research in diagnosis techniques and progression monitoring etc etc etc. I have 3 children and each of them has a 50/50 chance of carrying this affliction. I just feel that the more I can do now; the better the chances are that this shitty condition can be beat. And my children will live a better life. Keep on keeping on Howard.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6539769365000202093.post-33903936739599952812013-10-03T14:51:45.682-04:002013-10-03T14:51:45.682-04:00Brilliant solution for the parking spot. I don'...Brilliant solution for the parking spot. I don't blame you at all for saying "hell no" to the neuropsych testing - good for you. My mother went through round after agonizing around of it and they were ridiculously wrong (as well you know). Marlene J. Gearyhttps://www.blogger.com/profile/12770254616394169797noreply@blogger.comtag:blogger.com,1999:blog-6539769365000202093.post-44196596655747557492013-10-03T14:40:53.950-04:002013-10-03T14:40:53.950-04:00Just to be clear, are you saying no more tests? H...Just to be clear, are you saying no more tests? Haha. Good for you, Howard! You certainly have done more than your part to help promote FTD awareness. It's your life, your choice. Ritahttps://www.blogger.com/profile/01111919404657487706noreply@blogger.com