tag:blogger.com,1999:blog-6539769365000202093.post7146647875574537119..comments2023-09-10T06:45:28.292-04:00Comments on FTD/Dementia Support Blog: Explaining the UnexplainableHowardhttp://www.blogger.com/profile/07084503950259010035noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-6539769365000202093.post-20472362040393328612014-12-01T11:11:01.364-05:002014-12-01T11:11:01.364-05:00Hi Howard,
I don't know yet if I have dementi...Hi Howard, <br />I don't know yet if I have dementia. I have been having some trouble remembering how to spell words, and doing certain things. I feel like Alice in Wonderland. I go into some kind of zone that keeps me aware but not wanting to talk or do anything. I just am getting over encephalitis and I have volume loss in the frontal lobes in my brain and I am wondering if I am starting to have dementia. Going through testing now and will not know anything for a few months so it is very upsetting to not know and see myself : not interested in music any more, not wanting to be social, forgetting how to start the lawn mower, forgetting how to spell the word there, not understanding what some things mean when I say them. It feels like I am not me anymore like I am someone that I do not know. I laugh and cry at nothing and repeat certain words over and over again and don't know why I do it. I know that I am doing these things though but I cannot explain it. I feel like I am going crazy. Alice in wonderland again. My name is Lora and my email is liquidblues98@yahoo.com. I would appreciate any incite. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6539769365000202093.post-52979964774648279552013-02-22T19:13:55.696-05:002013-02-22T19:13:55.696-05:00Hi Pam,
Your very welcome. Feel free to write me a...Hi Pam,<br />Your very welcome. Feel free to write me anytime at howardjglick@gmail.com<br />HowardHowardhttps://www.blogger.com/profile/07084503950259010035noreply@blogger.comtag:blogger.com,1999:blog-6539769365000202093.post-23774276425652582772013-02-22T18:39:44.480-05:002013-02-22T18:39:44.480-05:00Howard...I have been reading your articles as link...Howard...I have been reading your articles as linked into the FTD forum. I want to thank you for your candid accounts of what is happening to you. As I read I am getting new insights that will help me to better care for my loved one. I believe they are feeling more comfortable with how I am handling things due to what I've learned from you and others as yesterday he told me he was feeling another episode coming on. Episode being an emptiness in his head, kind of like being asleep, but awake at the same time. He can't focus and has had moments of confusion. At the same time he may have a headache and/or dizziness accompany the empty head. He says it's an odd feeling inside his head and touches both sides of his head toward the front sides. Anyway, thank you so much.Pam McReynoldshttps://www.blogger.com/profile/01512859573793194606noreply@blogger.comtag:blogger.com,1999:blog-6539769365000202093.post-34166299392139631722011-07-17T16:35:58.640-04:002011-07-17T16:35:58.640-04:00Thanks Howard, this is a wonderful blog. It is com...Thanks Howard, this is a wonderful blog. It is communicating to the world what I already know, that your journey has been remarkable, the admiration and respect I have for you is equally remarkable. The potential of this blog is for caregivers, the medical and legal communities and people managing dementia; it's already a contribution.Marc Turkelhttps://www.blogger.com/profile/17054263214524997403noreply@blogger.com