Saturday, March 23, 2013

Frontotemporal Dementia Documentary - "It Is What It Is"

The award winning Joe Becker FTD short documentary, "It Is What It Is" has now been released in hi definition by AFTD through youtube. This powerful 15 minute documentary (plus 3 minute intro) shows you the harrowing effect FTD has on 4 different families. 

(18 minutes)

Joe Becker is currently working with me on a 2nd FTD documentary, "Howard's Brain" which is following my life living alone as FTD progresses. Howard's Brain is an ongoing project and will be a full length documentary. Please watch the 6 minute trailer.
(6 minutes)

Joe Becker is a seasoned Hollywood filmmaker whose numerous credits include the award winning hit  TV series "West Wing." 

Howard
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11 comments:

  1. AnonymousMarch 23, 2013 at 8:58 PM

    My husband and I watched this together. It was sad but also helped us understand more. Best video we have seen on the subject. Thank you, Howard, for sharing. Darla

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    Replies
    1. HowardMarch 23, 2013 at 9:19 PM

      Thanks Darla,
      Joe Becker is the greatest and I'm glad they've released "It is what it is" to Youtube.
      Howard

      Delete
  2. AnonymousMarch 24, 2013 at 9:27 AM

    So hard to watch, so moving and so vital for everyone to see,

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  3. su5ieMarch 24, 2013 at 9:36 AM

    Best wishes, Howard and many thanks to Joe Becker for promoting awareness of FTD.

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  4. AnonymousMarch 27, 2013 at 4:35 PM

    Hi! I'm 52yrs. Young and also living with FTD. I was diagnosed at the mayo clinic in Rochester , Mn. I have never met anyone else living with this disease so I'm very interested in hearing about your life experiences. It's nice to know I am not alone! I have not seen your video but know very well first hand what it's like to live with FTD. Although, I still don't think there's anything wrong with me. Go figure?!!!! Happy Easter !!!

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  5. AnonymousMarch 27, 2013 at 5:03 PM

    Hi! I'm a 52yrs young and living
    With FTD. I was diagnosed at the mayo clinic in Rochester, Mn . I have never met anyone else living with FTD but know first hand what it's like to live with this crazy disease! I believe laughter is the best medicine for dealing with it along with a glass of merlot :)! Best of luck and Happy Easter!

    ReplyDelete
  6. HowardMarch 27, 2013 at 5:13 PM

    Hi A,
    It is a crazy disease. I run an online support groups for crazy FTD'ers if you'd like to join and have been diagnosed with a scan. Send me an email if you'd like to join or if you just want contact with another FTD'er.

    Howard

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  7. AnonymousMarch 27, 2013 at 5:45 PM

    Wow! That was fast! Well this crazy FTD girl doesn't have an email but it was so nice to hear from you Howard . As you can see I'm alittle technically challenged too. Sorry, didn't think first post went through but then again I repeat lots of stuff anyway. I'll have to figure out email. Thanks! :)

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    Replies
    1. HowardMarch 27, 2013 at 5:50 PM

      Hi A,
      If your on Facebook, we have the FTD Patient Support Group there. It's light, fun and informative. We need crazy. Here's some info:

      http://earlydementiasupport.blogspot.com/2011/12/ftd-patient-support-group.html#links

      Take care of yourself. Your not alone. There's an AFTD conference on April 12 in Salt lake city. 13 of us FTD'ers are going. $400 travel grant if you want to go.
      Howard

      Delete
  8. AnonymousMarch 27, 2013 at 6:46 PM

    Howard, thank you very kindly for all of the information. I really appreciate the time you have taken to provide me and others like us with your support. I will not be able to attend the conference but wish you and all the others best of luck! :)

    ReplyDelete
  9. AnonymousMarch 28, 2013 at 7:11 AM

    Howard, well it definitely is what it is! Sorry , forgot to ask my husband if he could help me out with email or Facebook. But felt the need to tell you you're not alone either! Read some more of your blogs, wow! Couldn't believe that someone else actually struggles with life much in the same way as I do. I was taken completely by surprise when my doctor said we should check on healthcare places to live. I thought quietly for days and then I got mad! Who and what was she talking about? Anyway,don't know what I'm trying to say other than guess we are kinda sitting in the same boat . It may feel like its sinking at times so put on your lifejacket and know that you're not alone! Crazy girl! :)

    ReplyDelete

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