Monday, February 17, 2014

"Ask the FTD Patients" group

I treasure the good times and nice surprises in life now. Received this from the U.S. National Library of Medicine asking permission to include my FTD blog in it's collection. I'm humbled and honored that my work will be archived and made available to help those now and in the future. 

Dear Mr. Glick,
The U.S. National Library of Medicine (NLM) is building an online archive of Web content as part of its mission to collect, preserve, and make available to the public materials that provide information in medicine and public health, and document their histories.  NLM wishes to include your blog, available at, in this collection.
We are requesting permission to use Web archiving software to make an archival copy — essentially a snapshot — of how your site appears over time, and to make the content available to researchers through NLM. Including FTD/Dementia Support Blog in this online archive will greatly enhance the value of the Library’s collection. 

Thank you for your time and attention in this matter. We would greatly appreciate your reply verifying your approval. Please feel free to contact us with questions. 

Warm regards,

Sandra Taylor
Digital Manuscripts Technician
History of Medicine Division
Room 38/B2E21
National Library of Medicine
8600 Rockville Pike, MSC 3819
Bethesda, MD 20894

The National Library of Medicine is part of the National Institutes of Health, U.S. Department of Health and Human Services


 Announcing a new FTD online group 
"Ask the FTD Patients"

"Ask the FTD Patients" is a Facebook group made from the 
80+ patient members of the FTD Patient Support Group. The purpose is to answer questions from caregivers, loved ones and the medical community. 

FTD is a rare disease and it's so tough getting answers and understanding behaviors, medications and diagnosis's.  We are hoping that we who are diagnosed can contribute and help those in the FTD community gain further knowledge through our first hand experience and give back to society.

Participating are patients with all the FTD variants and all types of living situations. Some live alone, with family or in assisted living. We have experience on medications and the medical community. All of us have some degree of awareness and insight and all have firm FTD diagnoses with scans. 

"Ask the FTD Patients" is a 'questions only' group and not a support group for venting. All questions are screened by moderators and administrators who are people diagnosed with FTD. To join, just type in Ask the Patients in the blue Facebook search bar.

Here is a link to join Facebook. You can use a fictitious name.
Facebook signup

The sole purpose of this group is to help others and further awareness of FTD.



* I run a private FTD Patient Support Group on Facebook.  The groups for FTD Patients Only and is open to those with a firm FTD diagnosis. The support group is a place where those with FTD can gather in a positive environment and realize there not alone. It's also a source of accurate information which is rare in the quick changing world of FTD. The director of AFTD, Sharon Denny is a permanent guest member. AFTD has been kind enough to open up there medical board to answer member questions. Please email me at to join.

Thank you to those that have sent me letters, gift cards, Starbucks, cash etc. They are deeply appreciated. I've dedicated my life to FTD awareness and advocacy. For those that want to help there is a yellow donation button on top of the page or my address below with gift cards, checks or cash. All help is deeply appreciated:

Howard Glick
7791 East Osborn Rd. apt. 170E
Scottsdale, AZ 85251