* I run a private FTD Patient Support Group on Facebook. It is open to those with a firm FTD diagnosis. The support group is a place where those with FTD can gather in a positive environment and realize there not alone. It's also a source of accurate information which is rare in the quick changing world of FTD. Please email me at firstname.lastname@example.org to join.
The FTD Patient Support Group has given immeasurable support to many. Through the group many have been able to find and receive better medical support, friendship and a comfort of knowing there not alone with FTD. Many have met group members at get togethers outside the group.
The first feature FTD group member article will appear next week.
Funny, I ranted and used language unbecoming to take me off there "not sales" call lists. Didn't care what they called there calls to justify calling me. Just take me off the F list and don't call me.
Have been really trying to keep my language and behavior under control. Much of the confusion I've been experiencing since the move has yet to subside. Keep waiting for my brain to rewire and give me the time I need. Yes, the brain is a fighter. As we lose our brain to FTD, it keeps looking for outlets to rewire. The brain does rewire. That's why we keep losing and regaining. Sort of drives caregivers and everyone else crazy. Once acceptance of losing a skill or action settles in, boom: the FTD'er is back acting or regaining what was thought lost. Many a time I hear of someone not talking or wheelchair bound. Without warning there talking or walking, sometimes after years of being docile. How long this fight goes on is different with each person. The brain is the most complicated part of the body. Medical science is in it's infancy of learning about the brain.
Feel like I've been pounded on for months. Have had less human contact, but more bureaucracy interaction. Need more rest, but I'm committed to doing what I can do while I can do it. I've a lot I want to accomplish. Picked up more memory cards so I can get back to filming "Howard's Brain" yesterday. Howard's Brain will use confusion and clarity or the brain at different moments. I'm deeply driven, just need some good old fashioned brain rewiring.
I just moved to Arizona. Any help in the way of Gift Certificates: Target, Costco, Walmart, Starbucks etc. or checks would be deeply appreciated. Or if you just want to write me a letter or a note, that would be nice. All letters with or without donation will be responded to. I am not starving, but can use some help. Those who can help, that would be appreciated. There's also a donation button on top right of this page.
7791 East Osborn Rd. Apt. 170E
Scottsdale, AZ 85251