Friday, August 30, 2013

FTD and rewiring the brain


* I run a private FTD Patient Support Group on Facebook. It is open to those with a firm FTD diagnosis. The support group is a place where those with FTD can gather in a positive environment and realize there not alone. It's also a source of accurate information which is rare in the quick changing world of FTD. Please email me at howardglickftd@gmail.com to join.

The FTD Patient Support Group has given immeasurable support to many. Through the group many have been able to find and receive better medical support,  friendship and a comfort of knowing there not alone with FTD. Many have met group members at get togethers outside the group.

A new segment will be added to the blog in September. This will be a feature article about one of the FTD'ers from the FTD Patient Support Group. The group has some incredibly amazing people from all walks of life that will be telling there stories. Each person and situation different. From those living with family, alone to those in Assisted Living at age 40 or 50. Courageous people living a life that's slipping away, yet refusing to give up and make the most of there lives. The FTD Patient Support Group has over 70 members from 10+ countries. We all share the same unfortunate common bond, FTD. The same disease that is stripping the essence of life, our brain is bringing us together to fight to keep our lives going in a happy, productive way.  

The purpose is to give family, friends and the public a view and better understanding of FTD and those inflicted with it.

The first feature FTD group member article will appear next week. 


Lost it this morning. I've been receiving calls each morning from 6:30 on lately. Recordings and hangups. Decided to call back through my caller ID. Turned out they were all from United Health. Of course they were sales calls. Of course they assured me they weren't selling anything. They could get me goods and services for free. Suuuurrrre, an insurance company making call after call to give away free services. The new not-for-profit insurance company. Somewhere over the rainbow. Of course after probing it turned out they could get me goods and services for free and bill the United States through loopholes. Guess it's not called profits when you can weasel money from Uncle Sam. In other words, increase the insurance companies profits and compile the national debt which will harm our children and grandchildren. But it won't cost me anything. 

Funny, I ranted and used language unbecoming to take me off there "not sales" call lists. Didn't care what they called there calls to justify calling me. Just take me off the F list and don't call me. 

Have been really trying to keep my language and behavior under control. Much of the confusion I've been experiencing since the move has yet to subside. Keep waiting for my brain to rewire and give me the time I need. Yes, the brain is a fighter. As we lose our brain to FTD, it keeps looking for outlets to rewire.  The brain does rewire. That's why we keep losing and regaining. Sort of drives caregivers and everyone else crazy. Once acceptance of losing a skill or action settles in, boom: the FTD'er is back acting or regaining what was thought lost. Many a time I hear of someone not talking or wheelchair bound. Without warning there talking or walking, sometimes after years of being docile. How long this fight goes on is different with each person. The brain is the most complicated part of the body. Medical science is in it's infancy of learning about the brain.




Feel like I've been pounded on for months. Have had less human contact, but more bureaucracy interaction. Need more rest, but I'm committed to doing what I can do while I can do it. I've a lot I want to accomplish. Picked up more memory cards so I can get back to filming "Howard's Brain" yesterday. Howard's Brain will use confusion and clarity or the brain at different moments. I'm deeply driven, just need some good old fashioned brain rewiring.

Howard

just moved to Arizona. Any help in the way of Gift Certificates: Target, Costco, Walmart, Starbucks etc. or checks would be deeply appreciated. Or if you just want to write me a letter or a note, that would be nice. All letters with or without donation will be responded to. I am not starving, but can use some help. Those who can help, that would be appreciated. There's also a donation button on top right of this page. 


Howard Glick

7791 East Osborn Rd. Apt. 170E
Scottsdale, AZ 85251


6 comments:

  1. Thank you Howard. You give me so much insight to what my husband is dealing with.

    ReplyDelete
    Replies
    1. Hi Nancy,
      Your very welcome. All the best to you and husband.
      Howard

      Delete
  2. Hi Howard,
    I often wonder why I still keep a land line. It's just a direct line from telemarketers to me. It's just sentimental at this point since we all have cell phones.

    ReplyDelete
  3. Hi Susie,
    I don't have a land line. Just a cell phone. Am also registered on the no call list so these clowns find a to bend the law. There not allowed to make sales calls so they act like they have free giveaways.
    Howard

    ReplyDelete
  4. Hi Howard! I'm struggling trying 2 send you a message. I write it then I'm not sure what 2 do, aahh! FTD sure gets me all mixed up! Anyway, this is the crazy lady from up north. Hope you are doing better with the move. There are some days I don't know where I'm at in my own home. Glad 2 hear about support group but I don't have Facebook. Best of luck! Crazy lady :)

    ReplyDelete
    Replies
    1. Hi A,
      Call me anytime at 646-402-1236

      Delete

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