Wednesday, September 4, 2013

Moving Forward

* I run a private FTD Patient Support Group on Facebook. It is open to those with a firm FTD diagnosis. The support group is a place where those with FTD can gather in a positive environment and realize there not alone. It's also a source of accurate information which is rare in the quick changing world of FTD. Please email me at to join.

The FTD Patient Support Group has given immeasurable support to many. Through the group many have been able to find and receive better medical support,  friendship and a comfort of knowing there not alone with FTD. Many have met group members at get togethers outside the group.

*First a follow up to my Homeland Security/New York State DMV issue. Brief refresher: Tried to swap my NYS drivers license for an Arizona drivers license. I was deemed "Not Eligible" for another license. Thought I was being KO'ed for having FTD. Instead it turned out I was tagged and investigated by Homeland Security because I was moving to a new state and requesting a new drivers license. They found an uninsured vehicle accident in 1978 while I was in college. 35 years later Homeland Security gave the information to NY DMV who extorted $300 in a certified check or no Arizona drivers license. To me $300 is a lot of money. Yesterday, I received the return receipt that they received the check. There was also an envelope from City of New York, Human Resources. Great, now what? Yin Yang, Karma whatever. A check from NYC for $1092.23 to me for overcharging me on Medicaid years ago.  There is a God.

This story may not be totally over. I was told it would take 6-8 weeks for me to be cleared off the Homeland Security/NYS DMV "Not Eligible" list and be approved to receive an Arizona license. Arizona law requires you get an Arizona license within 30 days of moving to the state. Of course with my luck, nothing will happen :-)

Have been in Scottsdale, AZ for about 3 weeks. Life is tough but I'm having a good time. There is no question I took a hit with the "move" etc. I lost a bit to FTD. That's fine. I'm not looking back. I'll keep forging ahead "SD" without regret or remorse. My loose plan was get here and get immediately into a routine. Routine, routine, routine. Been pushing it as the single most thing an FTD'er can do for themselves. Easier said than done with the FTD tug of war. In fact, in a writing last week an FTD'er stated they couldn't get out of bed. I wrote Routine, Routine, Routine from my bed at 4pm. Well as I've said before, FTD can hang out but I'm in charge. My plan upon arriving in Arizona was to write a blog a couple of times a week no matter what. Morning/Starbucks/Write. Besides the blog there's plenty in FTD world to stay on top of. I needed a good start. Also wanted to go to the gym regularly. One for to ain't bad.

I'm really happy to say I nailed it. Yes, I'm FTD screwed but I'm going to make it here. Many thought I wouldn't. I want to thank everyone out there that has supporting me throughout this venture. Simply couldn't have done it without your support.

This blog set a record with 8,208 visitors for the month of August. What this means in real life is a lot of FTD awareness. FTD awareness and advocacy is what I've dedicated my life to, so I wanted to share this success.

Upon hearing this, my friend Sharon Denny of AFTD pulled out my original mailer that I did 2 years ago when I started this awareness journey. I never even heard of AFTD. In fact, the mailer was sent to there old address  

Subject: Website submission from Howard Glick

Website contact submission (form: "Contact Us") ============================================
Submitted on: July 21, 2011
By (visitor IP).

I was diagnosed with FTD last year after being misdiagnosed as being bipolar for 6 years. I have spent the last year in support groups and have done a drastic life style change to try and slow down the diseases progression as well as learn to live, be happy and have purpose in life.
I started a dementia support blog to help people with ftd, dementia's, as well as a resource to caregivers, friends, and the medical community. about 8 days ago and have so far written 4 articles. I have had over 200 visits and members now include the coordinator of early services for the Alzheimer's Association, my neurologist, friends, my support group members, family members of people with ftd dementia like myself and anyone that want to learn first hand what living with dementia is like.

Please visit my blog and feel free to contact me and/or advertise it as a resource.

Howard Glick

*** I will no longer be participating on Linkedin. Due to diminishing skills, I've lost the capacity to use it and haven't been able to relearn. Drop what you can't do, move forward with what you can do. Don't look back, don't stop. 

Was going to write a few other things, but I can't. Next blog will be: FTD Progression and Lifespan.


just moved to Arizona. Any help in the way of Gift Certificates: Target, Costco, Walmart, Starbucks etc. or checks would be deeply appreciated. Or if you just want to write me a letter or a note, that would be nice. All letters with or without donation will be responded to. I am not starving, but can use some help. Those who can help, that would be appreciated. There's also a donation button on top right of this page. 

Howard Glick

7791 East Osborn Rd. Apt. 170E
Scottsdale, AZ 85251


  1. Howard,
    One thing I learned about FTD is that personal communication with other people is very important. Possibly you could volunteer at the local nursing home and run a group there. It would benefit them, but more importantly benefit you.


    1. Thanks Susie,
      Good idea. I'm mulling a few things around.

  2. You always amaze me Howard. You have one of the best attitudes I've ever seen. You are strong and you are going to be just fine. I love the way you always forge ahead and find humor in every situation. Thanks for being a good example. I think many of us carers and probably people with FTD could easily fall into self pity or depression, anger, any of those non productive, negative feelings. But reading your blog makes it MUCH harder to do that. Thanks for being such an inspiration to so many, thanks for sharing your journey. As a carer, I really appreciate it.


    1. Hi Heather,
      Thanks so much for the compliments and the confidence in me. Took me a minute to find the word confidence. Just came from lunch with a patient/caregiver. By the end of lunch the carer realized and understood her husband was still there and loved her. Wish I could strike the work apathy from the dictionary. I love the medical community but between there drugs that are ineffective and them feeding into making people resentful and angry it so pisses me off. I really feel the medical community knows nothing on how someone with FTD thinks and operates. Have had to many of these meetings and they all go the same way. It was nice to see anger turn to watery eyes of love.

  3. HI Howard!
    Just linked onto your blog. Love your positive attitude. My husband is 58 and has FTD. His comprehension is poor, as are social skills and cleanliness. But he is very happy and I am very lucky he is! We are forging ahead s best we can! Good luck to you!

    1. Hi Jane,
      Thank you. Glad you and your husband are getting through this.
      All the best,


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