* I run a private FTD Patient Support Group on Facebook. It is open to those with a firm FTD diagnosis. The support group is a place where those with FTD can gather in a positive environment and realize there not alone. It's also a source of accurate information which is rare in the quick changing world of FTD. The director of AFTD, Sharon Denny is a permanent guest member. AFTD has been kind enough to open up there medical board to answer member questions. Please email me at firstname.lastname@example.org to join.
One of the FTD Patient Support Group members posted this to the group. I thought I would share it. Many of the members picked out there own FTD Superheroes to help in the fight.
These are the FTD SUPERHEROES! Each one focused on fighting off our evil nemeses (family who don't understand, friends who doubt, people who say stupid things, brain plaque, tau and beta-amyloid, apathy, doctors, medicine side effects and brain atrophy). Pick your hero and have fun fighting.
Haven't used my headphones in 3 weeks. The AAA battery it used died and my extra batteries found a new home back in NYC. Can't decide whether to buy a 4 pack or more cost effective pack from Target or Costco. Have been trying to buy some for about a month. Cannot make a decision.
On my 4th kitchen garbage pale. Keep buying them and returning. To tall, wrong color, to short. Cannot make a decision.
Still nothing up on the walls yet. Did print pics of my kids. That's a start.
Had some pregnant neighbor trouble. Yesterday during my 3pm afternoon rest period I had the music on. Not blasting, but Friday afternoonish enjoyment. Not Hendrix or Black Sabbath, but CSNY - Crosby, Stills, Nash and Young. A few weeks ago she complained and I tried to get times that were okay to play. Instead, she mentioned they have a stereo that could blast me out. Okay, I'm not one to put up with threats by anyone, FTD or pre-FTD. NAFW - gave her a pregnancy pass. In fact, I took my old friend Howard Aaron's years old advice and brought them a bottle of wine. They didn't take it. Don't drink. Still in my cabinet. Hey, we live in an apartment complex, walls are thin. There are many various noise complaints. I hear her dogs barking, I don't complain.
3pm in my birthday suit, "Pound, Pound, Pound". No knocking, pounding. Knew it wasn't her husband. He's wasn't aggressive, could only be her. Pound, Pound, Pound. Stared at the door. No fucking way was I going to open that door and FTD a crazed 8 month pregnant woman. No Fucking Way. "Do Not Engage". Went back to my computer. In a few months when the baby is teething and crying in the middle of the night, what am I going to do. Pound, pound, pound and tell her to duct tape the kid? No, I'm going to deal with it. Community living. Big country, they can move. See, I'm doing well in the control department. I was going to write they can move the fuck out. Instead, they can move. Kudos to me and FTD.
I did leave 10 minutes later. Hey, she's pregnant and I'm not a total asshole. As I passed her door, I'm projecting,"don't open".
Went to Starbucks without my proper rest. Usually head out for round "2" around much later. Yea, yea, yea I'm getting my FTD shit together. In/out, active, rest, active, rest. Keep up routine. Keep away that pesky parasite depression. Don't isolate. I'm alone and will not fail.
At Starbucks I met a tenured ASU business professor and one of his ex-grad students. He was originally from NYC a million years ago. Wanted to ask his advise on interns and do my FTD thing. I have many projects going and can use a students or someones help. I'd be so much more productive. Didn't realized how exhausted and what a mess I was. Stammered and bumbled through everything. The ex-grad student almost looked scared. In fact, she did. I could see he got it, but was feeling sorry for me and just being polite. Of course when I mentioned my Forbes article he immediately was back into and focused on my computer to read it. He was a nice guy, but I felt I totally blew it which was a first. Guess not a first. Selective memory impairment LOL.
Met a new doctor this week. Did everything I advise people not to do when choosing a doctor. He was an arrogant, condescending asshole. Yep, fired his ass. Will be writing more about this next.
Writing this blog is a tremendous amount of work for me. When I'm done, I'm totally exhausted usually till the next day. My commitment to Howard Glick and you was to get into a routine when I moved to AZ of 2 or 3 quality blogs a week and do not deviate or fail. My blog has been my base for all my work. I haven't deviated. Though yesterday's encounter with the business professor really was upsetting, I've already brushed it aside. It's another beautiful Arizona day out. Am at Starbucks making my plan for the day. I'm going to head to Walmart, exchange garbage pails yet again and buy AAA batteries. After I shall hang out at Chop Shop, have a healthy fucking salad, sit and watch God's beautiful creatures go by. You want to enjoy life, you have to make it happen.
Howard Glick - Living and loving life in Beautiful Scottsdale, AZ. Have dropped 12 pounds. Yes, I see the greens between my teeth LOL.