I am lucky to have the best friends in the world who no matter what happens, will not give my an inch of slack or let me feel sorry for a myself. We love each other and we treat each other the same way since we were 5.
I take everything one step at a time. My reality is still this:
I'm barely making it and a rent freeze and food stamp increase would have meant I could have had a small measure of stability into the future the I wouldn't be on the streets.
Never mind never seeing my teenage children who live in Seattle. I miss them.
Guess what, I'll find a way out. I really don't care what obstacles the Universe throws at me at this point. I am going to find away out of this hole.
I ain't heard no fat lady singing yet!
I intend to keep going till there's nothing of me left. No matter how rough each day gets I will meditate and clear my my at night. I will figure out new ways to articulate what it is like to think like an FTD'er and to keep pushing towards greater public awareness of FTD.
I will continue to go to Starbucks 7 days a week and continue the work I'm doing. At this point my intentions are to start working towards speaking engagements and motivational speaking. This is with or without my other projects that are looking promising at this point.
I believe we are all masters of our own fate. No matter how difficult things become I will never return to the medically induced fog I was in for
over 6 years. It may not be fair to me or others around me, but that's the way it is. This is my decision to make and I've made it. Forget the easy road.
Besides dealing with the minor complication of FTD in my life I am involved in many online group/forums/etc. I've noticed in multiple forums people get caught up with a situation and go on harping on a topic or point. Let me pull a Seinfeld and say,"Not that there's anything wrong against joining the band and being supportive."
One example is a recent person who was justifiably upset and wrote about it. At the end the person wrote there sorry about whining. From that point there many wonderful supportive people went on to discuss whining. Page after page after page went on discussing whether whining was okay, whether the individual was whining and that this was the place to whine if they were whining. I'm sure someone will whine about me writing about whining.
I wrote the following response and I'm publishing it because I'm involved in many groups on and off line. I feel we all need to sit back, breathe and be human. In no way am I mentioning anything that can allude directly to any group or individual.
The following was my response to multiple pages of responses to whining:
To wine or not to whine, or to whine and not to wine. that is the question? I will at anytime share a bottle of wine and whine or not whine with anyone who prefers wining over whining or whining without wining.
After reading page after page of whine or not to whine, I'm sitting here at Starbucks laughing and not whining.
FTD is a strange, elusive, devastating, and absurd type of Dementia. Then again there are people out there that will argue it's not a form of Dementia.
Hey, caregivers and fellow FTD'ers. Kick back and relax with or without a bottle of wine and enjoy life for a moment. We are all doing the best we can and deserve some laughing, crying, whining and wining. Groups can be a great release, but let us all remember we need times of levity even in groups where things get vey intense.
Sit back with your loved ones and pull out the old picture album or bring up some old fun stories. We are living and moving on. Find a way to find some happiness in your life with or without wining or whining.
Howard Glick - FTD'er who is living life with happiness and purpose