The above medications are anti-psychotics, anti-anxiety, antidepressant and sleep medications.
These are the meds I was on while on pharmaceutical cocktails for 6+ years of being incorrectly diagnosed as bipolar. I say incorrectly and not misdiagnosed because I have a lot of respect for most of the Doctors and I know they tried there best with the information they had.
FTD mimics bipolar. Over 50% of FTD cases are misdiagnosed as a mental illness.
There are no FDA approved medications for FTD. FTD is untreatable, unstoppable and incurable.
I have been off all the above listed medications since June 2010 when I was told the PET scan and neuropsych testing showed I had FTD.
Friends and support groups are the best therapy to try and manage the symptoms of FTD. Even though I'm doing much better with my mood improved and me functioning much better. FTD continually takes me by surprise by showing it's ugly face and tries to destroy anything I have left in life.
The medical community and most caregivers agree that the best way to handle those with FTD is to drug them up and make them almost incoherent. That makes life easier for everyone. What does a caregiver do for a loved one that is now different from the person they've known for years. They don't want to abandon them, but can barely deal will them. Everyones life gets ruined by FTD and it's just easier in many cases to drug the person, than try to help them be themselves to somehow be the person they were. The more you drug people up with FTD, the less they use there brain and the faster and further they slip.
There are many medical theories to FTD'ers and the use of their brain. One theory is how the brains with FTD function at a higher level earlier on, even before symptoms show because the brain knows it's in trouble. I'm told frequently how high functioning I am, even though I drive everyone crazy.
Then there's a theory that since part of the brain is being systematically destroyed, other parts or the brain aggressively make up for it.
I'll let the scholars argue to which if either of these theories are correct. Me, I'll just say there are many with FTD that are wasting away on drugs because they don't have the correct support to help them and there are absolutely no programs or support groups targeting those with FTD.
I started my own on-line FTD Patient Support Group. It now has 36 members and is a large success. Yet besides AFTD, I cannot find anyone to help. I'm told there to many legal ramifications or unknowns. In other words, plenty of excuses, no actions. Therefore there many with FTD out there that are getting no support. Caregivers and loved ones get support, but not patients. The disease is to complicated.
I can only hope someone has the balls out there to do the right thing because FTD patients are out there and need help.
I fight to manage the symptoms every moment of every day. I have no caregiver and can't ever see there being one. It's virtually impossible for just about anyone to put with me because of the behaviors that constantly manifest from FTD.
I'm in a losing battle, but am happy to fight it.
I can only judge what I'm doing with my life and shouldn't judge others. Yet, I know now of others that are suffering and that can coexist without being drugged up.
Me, my life is sheer hell a good deal of the time but so what. I've incredible moments of happiness and sense of accomplishment from things I'm doing.
I do have to live constantly on the edge because the long term disability company UNUM, a 6 billion dollar company who has been under government investigation and fined for not paying claims has decided not to pay my claim.
Unum knows I have FTD. The medical evidence that I had it when I was under there policy is indisputable. I know plenty of others with FTD that have Unum policies, that are getting there disability. Yet, it's simple corporate greed and keeping up profits. I have a lawyer and a case will take years. Shame on Unum because they know I don't have years. We're not talking about a huge amount of money, just enough for me to get the necessary medical care and see my kids more than once a year.
It would be nice to plan for a long term facility and not scrapped off my apartment floor some day.
If anyone out there is with HR for any firm. I would investigate Unum closer before going with them as your long term disability carrier. You'll find they have many skeletons in there closet and routinely screw people who have there policies.
I am going to be starting a large campaign against Unum to make sure people are aware of what a despicable company there are.
All in all, I will not take drugs and I will keep fighting to educate, further public awareness and help those with FTD. This is what I've dedicated my life to.