All drugs have side effects and extreme tiredness is one of Namenda's. A few weeks ago I was thinking of taking the chemical route. Many people who have FTD were suggesting I take more medicines to give me a better life. Considering I used to be on up to 17 pills while being misdiagnosed, I wasn't looking forward to starting the whole chemical/drug dependency thing again. I also don't have a psychiatrist and can't afford one or the strict monitoring that comes with being an FTD patient taking a pharmaceutical cocktail. Never mind the cost of the drugs. The drug adderal (amphetamine) is a popular pick me up for day use in the FTD community. I am so tired of having dreary days because I'm dragging that I was seriously thinking this route.
Pills for FTD are all trial and error. There's no pill or FDA approved medication for FTD so it comes down to lets try this anti-seizure pill and mix it with an anti-depressant and see what happens. Go back and see the psych next month for an evaluation and medication adjustment. Then it's how do we treat the side effects of these pills. By adding another pill, switch meds or downsize. Of course since FTD is uncooperative by being progressive and the brain keeps changing by shrinking, no combination ever works for long. As far as making a drug just for FTD, well FTD is rare so there's not much return on investment for a new drug being made. Easier to piggyback off other drugs for other diseases and use existing patients as guinea pigs.
Recents studies on Namenda which I wrote about in a previous blog concluded that Namenda is ineffective and rarely works. Now, the million dollar question was whether my extreme tiredness was due to FTD or Namenda?
If it was due to FTD then adderal or a similar drug would help me function better during the day. If my tiredness was a side effect of Namenda, then I would be taking adderal (speed) to combat a side effect of a seemingly useless drug.
Yesterday afternoon about 3pm I was up and walking around and ran into people that know me. Many were surprised to see me out in mid-afternoon. One person said to me after about 10 minutes she was shocked and happy to see me in an FTD rant. She knows my behavior patterns and told me I'm usually dragging anytime after 10-11am.
Yes, that's what NYC needs. Howard Glick back to 18 hours a day of FTD rant. If I had a caregiver they probably sneak me doses of Namenda or Seroquel.
Anyway, it's Saturday morning and my energy level continues to improve and the Namenda induced lethargy is going away. Filmed about 30 minutes this morning for "Howard's Brain".
If for any reason my conditions worsens or I see any negative change because I'm off Namenda, I will immediately blog about it. I have zero ego when it comes to saying I'm wrong and giving accurate details of the truth.
At this point I'm one week off Namenda and there are only positives, no negative.