The Annual AFTD Education Conference is in Salt Lake City, Utah on April 12, 2012.
Caregivers as well as patients have been invited to the conference. Last year was the first year patients were invited. We had 9 patients and it was a successful meeting. This would be a good place for us to get educated on FTD as well as have our voice heard as to the needs of patients. This year we're planning more activities for patients to get together. Since FTD is such a rare disease, this is an opportunity to see your not alone and learn different tecqniques of dealing with FTD. It's also an opportunity to get for caregivers and patients to get educated on the latest information on FTD.
Respite grants for travel are available.
I'll be getting in early afternoon on April 11th and will be arranging for an informal dinner for whichever patients and caregivers want to join in.
Besides being educated this will be an excellent conference for those in the USA, Canada to network and help set up new support groups for patients and caregivers.
Besides being educated this will be an excellent conference for those in the USA, Canada to network and help set up new support groups for patients and caregivers.
Here are the links to the Conference and the agenda:
2013 AFTD North American Education Conference
Conference Information Link
2013 AFTD Salt Lake City Conference
Registration
Conference Information Link
2013 AFTD Salt Lake City Conference
Registration
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