Tuesday, September 11, 2012

New Trial for FTD Drug Announced

Announcement for new clinical trial for a drug which will stop the progression of bvFTD.

"If successful, this will be the first investigational drug that is able to arrest the progression of this disease."

(Click link below to go announcement)

Patients and caregivers are invited to sign up for Clinical Trial and study updates as more news is available at:

(Click link below to sign up)

Please note, in many countries outside the United States  FTD is still known as Pick's Disease. FTD or Pick's disease is named after Arnold Pick, a psychiatrist who first discovered the disease in 1892.

Since I've been diagnosed 2 years ago in NYC, I've watched the name changed and squabbled over from: 

Pick's to: 
Frontotemporal Dementia (FTD) to:
Frontotemporal Degeneration to(FTD):
Frontotemporal Lobar Degeneration(FTLD):

Personally I think some people have to much time on there hands and like to bicker over language. Then again, who am I. 
Just a FTD'ed Demented Degenerate :-)

Frontotemporal Disorders

The specific subtypes of frontotemporal degeneration are:

* Behavioral Variant FTD
* Nonfluent/agrammatic variant primary progressive
* Semantic variant primary progressive aphasia
* Logopenic variant primary progressive aphasia
* Corticobasal syndrome or degeneration
* FTD/Motor neuron disease
* Progressive supranuclear palsy

For information on these FTD subtypes visit:
AFTD - Association for Frontotemporal Degeneration. Below is a direct link to the disorder page.



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