Off we go into the New Year. The end of the year I tried changing my routine to somehow force myself into "book writing" mode. Seems like every year I change around my routines that work and wind up grinding to a halt. I just redecorated Starbucks and brought it back to pre-holiday Howard FTD comfort level. Back in the captains chair and off in the right direction. No more running around going crazy trying to find a comfortable place and alter what works. Next time you read that I need to alter my routine to be more productive, please give me a swift kick n the buttocks or a baseball bat hit to the head. Knock some sense into me. Everything I'm doing is getting done in it's time. Yes, "All in good time, my pretty."
Asked them at the end of this trip if they noticed anything different about me since a year ago. They both agreed that I'm more emotionally detached. That's the main thing they noticed over last year. I know it. I know it and it hurts like hell. Would love to write here a solution, an action or problem solver. Sometimes in life there are no answers or solutions. I can only hope to see my kids more in the future and become closer and have a further understanding. FTD sucks. My children also noticed I've more energy than last year. I explained to them because I no longer take Namenda/Memantine for FTD. The last 2 pills (Aricept/Namenda) the medical community recommended I take for FTD are now on medications to avoid with FTD list. Maybe someday the medical community will get it's shit together with FTD. Right now the medical community is on my "avoid" list. No question I'm doing better without there ,"No answer, pretend answers." Come out with a cure and I'll be first on line, otherwise don't call me, I'll call you.
AFTD is addressing the issue of kids with an FTD parent. AFTD will be launching a new website………..
AFTD is developing and exciting new website for kids and teens who have a parent with FTD. We will begin to populate the site prior to its launch in Spring 2014. Children (ages 12 and under) are invited to submit a personal story, poem or work of are about their experience to be featured on the site. For more information email: firstname.lastname@example.org. (Submissions from teens with be requested soon.
Will be blogging again soon. It's been a while and this is a new start. At this very moment I'm feeling tremendous pain of loss of family, loss of a life that has been decimated by FTD.
I plan to articulate my life with FTD. Both here and in my book. I constantly read from caregivers and the medical community how FTD patients are acting, behaving and feeling. I intend to keep explaining what's in FTD patients heads.
We've a lot of work to do………………