Friday, March 16, 2012

FTD Blog Reaches 15,000 Visitors

click link to see trailer and donate!

Please donate to "Howard's Brain" and help us further public awareness of FTD. The project will help with raising funds toward an eventual cure.

Special Thanks to AFTD for there generous donation.

*$50 donation receives "special thanks" in the films credits.


My FTD Support Blog crossed over 15,000 visitors. 

Thank you so much for your support.

The blog is my base of operations. I started this venture 8 months ago. I remember celebrating after reaching 100 people. 

I started the blog to help those with FTD, as well as a way of saying thank you to the many people that've helped get me back on my feet. 

Since starting the blog I've also been involved in a number of other projects in the world of FTD. Some have been successful and others not.

The "Howard's Brain" film project has filmed over 100 hours and is in the production stage.  This documentary will not only further public awareness of FTD, but will give the medical community footage of someone with FTD going from one stage to the next. This will hopefully help in the treatment of others. I have dedicated my life to fighting FTD and am committed to filming as long as possible.

The other project I am proud of is the FTD Patient Support group. This private group is now up to 36 members. I started this group so there would be a comfortable place for people with FTD to go, as well as a good resource for accurate information. Little did I know when I started it, how much that group would be helping me. I am honored to be a member of the group, for the members are the bravest and most spirited people I've ever met. 

Though I like to try ignore the fact that my sidekick FTD is hanging out, FTD unfortunately hasn't been ignoring me. I've been finding it more difficult to function.

As many of you know, I don't have nor want a caregiver. The closest thing I have to a caregiver is AFTD, particularly Sharon Denny. AFTD and Sharon are there for me 7 days a week. 

AFTD is not only the worlds leading resource for accurate information on FTD, but there staff goes way out of there way for each person that contacts them. There more than just a nonprofit, there a source of comfort and backbone to many.

People write to me concerned of my future plans for long term care. There's not a lot of planning that can be done when your on public assistance and 63 cents a day in food stamps. I am comforted to know I have AFTD and NYC Riverstone (Memory Club) to help me in that transition. 


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