Monday, October 21, 2013

Alzheimer's Foundation article on FTD

FRONTOTEMPORAL DEMENTIA:
A DISEASE STILL CLOUDED IN MYSTERY
The Alzheimer's Foundation of America



PLEASE ENJOY THIS ARTICLE ON FTD FROM THE 
ALZHEIMERS FOUNDATION of AMERICA 
I ADDED AN ARTICLE FROM AFTD AND 2 FROM FORBES. THE PURPOSE IS TO SHOW HOW PEOPLE CAN ADJUST TO LIVE WITH FTD.
THANK YOU

Please scroll down for full size article
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Alice G. Walton
    Alice G. Walton, Contributor
    I cover health, medicine, psychology and neuroscience.
Brain Ventures: A Businessman's Battle With A Rare Neurological Disorder


If you start chatting with him at the localStarbucks where he hangs out six days a week, you might not realize much was wrong with Howard Glick. Intense periods of working on his laptop punctuated by animated banter with the other coffee shop regulars make the 53-year-old native New Yorker seem like a regular Joe.
Howard tells people that he is a retired businessman who now devotes his time to a medical blog, which is mostly true. He is a former regional director of sales for a successful tech company. And he does have a blog that educates people about a medical condition.
But there’s a lot more to the story, 





Inside The Mind Of Frontotemporal Degeneration: A Patient's Story

The first of the FTD patients talks about what it’s like to “live a life that’s slowly slipping away.” More patients will share their stories in the coming weeks.
 
A self-professed pain in the butt, Howard Glick, 54, has shaken up the FTD community, mainly for the purposes of bringing patients together and bringing attention to this little known brain disease. Last year, he launched a blog to chronicle his own road with FTD, and he is now, in concert with the Association for Frontotemporal Degeneration (AFTD) and producer Joe Becker, making of a documentary titled, appropriately, “Howard’s Brain.” He also heads an online patient support group for “FTD’ers,” the first of its kind. Caregivers are not allowed to join.
When asked to describe what it’s like to be “inside” a brain with FTD, Howard speaks candidly. “I 







I live alone and could use help. Am on Social Security Disability with no other help. Things are real tight. Gift cards, Starbucks, Costco, Trader Joe's, Outback, cash are deeply appreciated. For those that want to help there is a yellow donation button on top of the page. 

Howard Glick
7791 East Osborn Rd. apt. 170E
Scottsdale, AZ 85251

howardjglick@gmail.com


* I run a private FTD Patient Support Group on Facebook. It is open to those with a firm FTD diagnosis. The support group is a place where those with FTD can gather in a positive environment and realize there not alone. There are 80+ members from 10+ countries. It's also a source of accurate information which is rare in the quick changing world of FTD. The director of AFTD, Sharon Denny is a permanent guest member. AFTD has been kind enough to open up there medical board to answer member questions. Please email me at howardglickftd@gmail.com to join.
Howard

2 comments:

  1. Thank you for sharing all of this great information Howard! I know your blog is so helpful to many who are either living with FTD, have a loved one with it or just want to become educated with how someone goes about living life with FTD. Keep up the great blogs! I always look forward to reading them and finding out how you're doing.
    Kathy :)

    ReplyDelete
  2. keep up the good fight. I don't respond often but I am still here

    ReplyDelete