John Davis -England new member-FTD Patient Support Group
There are 3 subtypes of FTD-PPA. The variants are: Nonfluent, Semantic and Logopenic. Please visit AFTD for details on these.
My name is Natasha Young and I'm 27 years old. I go to College of Southern Nevada majoring in Deaf Studies. I used to be an Applied Behavioral Analysis ( ABA) tutor working with children with Autism. I was an ABA tutor for 6 years. My first symptoms of PPA started having trouble understanding conversation, forgetting words I knew, having trouble in college, and communicating. Family and friends started seeing these and kept calling mom. Finally, I went to see a neurologist. She did MRI, fMRI, and PET Scan. The PET Scan and fMRI showed PPA in Brock's aphasia. My experience with doctors has been good. Most of my doctors never heard of PPA/FTD or encountered with a person young in 20s. But, I educate them with AFTD and NAA resources. FTD has affect me to work. I no longer work with children with Autism. My family are loving but still in denial. I now relying more help from friends and family then before. I'm using speech assistive device to help me communicate. I was denied 3 times for SSI. Have a lawyer helping now. Last August, I started a Facebook group for PPA. It's called Primary Progressive Aphasia Support Group. I wanted to let people know that they are not alone with this sucky disease. I also want caregivers and speech therapist know PPA. My goal is to keep fighting this PPA, educate, and keep enjoying life.
Wrote a poem that I like to share about my PPA.
Primary Progressive Aphasia what is that? What does PPA mean? Is it good or bad? Do I really want to know?
Primary progressive aphasia (PPA) is a language disorder that involves changes in the ability to speak, read, write and understand what others are saying. It is associated with a disease process that causes atrophy in the frontal and temporal areas of the brain, and is distinct from aphasia resulting from a stroke. In 2011, criteria were adopted for the classification of PPA into three clinical subtypes: nonfluent/agrammatic variant PPA, semantic variant PPA and logopenic variant PPA (Gorno-Tempini, Hillis, Weintraub, et. al).